What size catheter do you use? How many do you use a month? On Sun, Sep 5, 2021 at 8:37 PM Dana Wray <[email protected]> wrote:
> Lori and I emailed and talked on the phone. She had written me in June and > I saw the email after I got out of the hospital and then I had to go back > to the hospital for exploratory surgery. I wrote her but didn't hear back > from her. I should've tried calling her, because in her letter she didn't > know where she was going and she was trying to find a home for her > beautiful dog. She had medical issues from the nurse that was improper and > not sterile,sringmylia that cause pain, like Julie said being uprooted from > her sisters home. I don't think they understood or liked her having > caregivers coming in and out of the house. It's what a lot of us face when > we don't have enough care. She receives Social Security from her husband > and her own but it wasn't enough to pay caregivers, her apartment and > living expenses. She wasn't able to get any help from the state. She loved > her scrapbooking and her dog that she walked every day. She had a great > caregiver and after she left she got a new one, but they were leaving. We > were trying to find out everywhere we could post an ad. It is often so > difficult to find specially if you have limited funds. This is what happens > to a lot of quadriplegics and why they get sores and die. I wish they would > do a study on this but with the current administration, I don't think they > would do anything to help situations like this. I don't know what kind of > care is available in the state of Arizona. I don't know if there's anybody > else on the quad list that lives in Arizona She had a wonderful niece that > would spend time with her, but she lived out-of-state, maybe Texas. I'd > have to look up in my old letters about specifics. I loved her and enjoyed > talking on the phone and emailing her. I will truly miss her. I lived in a > nursing home for three years and it is a long story. All home facilities > don't know how to take care of quadriplegics and don't have the staff. It's > like a death sentence to go to a nursing home after living independently > all your life and having a dog that you dearly loved. I pray that she died > in her sleep and didn't have to suffer. I don't know that we will find out > what the cause of death was. We have lost quite a few persons that I miss. > it seems. I'm not familiar with you Julie. I'm on Facebook. I've always > enjoyed the quad list and learning about other persons facing the same > problems and learning from them. Dana, 47 years post, C4-5, tracheostomy, > ileoconduit. Those of the hospital for 10 days for two kidney infections, > sepsis and ammonia in June. Several weeks after that I had exploratory > surgery to find the kidney stones. My urologist couldn't find kidney > stones. . I have tubes hooked up to my kidneys that are turned off right > now. My kidneys were not draining properly. Has anyone else ever had this > problem. I'm assuming I will have to go back to the kidney doctor. My > urologist could only use the camera in the ileoconduit and ureters not the > kidneys. Three weeks ago I ran out of the suction catheters. The company > they switched me to would not answer the phone. Thanks to Jim Lubin, he > gave me the name of the company he uses, and I hope they will be shipping > to me soon, before I run out of the ones I had to buy privately. I > contacted for five different companies and none of them answered me. I > don't have very many left. > > We can write on Lori's Facebook page. Lori will be missed, she was such a > good communicator about her life. Let's make a list of those we have lost > on the quad list. We can remember them again. > > On Sun, Sep 5, 2021 at 1:13 AM Gail Holmes <[email protected]> > wrote: > >> If I recall correctly a few years ago Lori was uprooted from the >> northeast where she lived w her sister and brother-in- law after the >> unexpected death of her husband who was her caregiver. >> >> I believe she said her parents were deceased and she had no choice but to >> go it alone and decided on Phoenix area for the climate I think. >> >> I know she had medical complications with her bladder that she said was >> from a nurse’s poor handling of the inflated bulb of her then foley >> catheter. >> >> This resulted in trauma to her urethra that caused problems and >> hospitalizations and ultimately she got a Suprapubic catheter I believe. >> >> Please someone correct me if I’m getting it wrong and fill in what >> details I’m missing. >> >> The last I remember was she was in urgent need of a live in caregiver >> replacement. >> >> I’m so sorry to hear of her passing and also wonder what happened and >> what became of her beloved dog. >> >> >> >> >> >> >> >> >> >> Sent from my iPhone >> >> On Sep 4, 2021, at 5:28 PM, Jeffrey Gaede <[email protected]> wrote: >> >> >> Wow! Thank you! >> >> On Saturday, September 4, 2021, 03:00:52 PM PDT, Julie <[email protected]> >> wrote: >> >> >> https://www.tributearchive.com/obituaries/22137694/lori-sue-michaelson >> >> >> >> >> >> *From:* Jeffrey Gaede <[email protected]> >> *Sent:* Saturday, September 4, 2021 3:46 PM >> *To:* 'Michael Galvin' <[email protected]>; [email protected]; >> 'Eric Olson' <[email protected]>; Nichole Rohling < >> [email protected]> >> *Subject:* Re: [QUAD-L] Lori Michaelson >> >> >> >> Not only what happened to her but can someone give me some background on >> Lori. I've been on and off Quad-list for 15-20 years, I definitely remember >> her name but not much else. Can someone provide some background please. >> >> >> >> On Saturday, September 4, 2021, 12:29:36 PM PDT, Nichole Rohling < >> [email protected]> wrote: >> >> >> >> >> >> Michael >> >> >> >> Do you have any idea what happened to her? >> >> >> >> Nicki >> >> >> >> *From:* Eric Olson [mailto:[email protected] <[email protected]>] >> *Sent:* Saturday, September 4, 2021 1:23 PM >> *To:* Nichole Rohling >> *Cc:* Danny Hearn; Quad-list Post >> *Subject:* Re: [QUAD-L] Lori Michaelson >> >> >> >> Wow I was just going to email her about her live in also. Do you know >> what happened? >> >> >> >> >> >> >> >> On Sat, Sep 4, 2021 at 12:53 PM Nichole Rohling <[email protected]> >> wrote: >> >> I was just talking about her this week. I hate to hear this. >> >> >> >> Nicki >> >> >> >> *From:* Danny Hearn [mailto:[email protected]] >> *Sent:* Friday, September 3, 2021 8:04 PM >> *To:* [email protected]; Michael Galvin >> *Subject:* Re: [QUAD-L] Lori Michaelson >> >> >> >> Wow, Sad to hear this about Lori......I have been wondering about her >> lately, I know she was concerned about needing a new care-giver and worried >> about her Dog if she had to go into a living type center. Thanks for >> letting us know. Dan H. *** >> >> On Friday, September 3, 2021, 07:53:31 PM CDT, Michael Galvin < >> [email protected]> wrote: >> >> >> >> >> >> >> >> I have not seen it on the quad list, and I'm not sure if people already >> know, but Lori Michaelson passed away a few weeks ago. >> >> >> >> She will be missed. >> >> >> >> PQ >> >>
