Wow, Lori that does sound strange....do you think the catheter is in place
correctly and the little balloon that holds it in bladder is inflated right?
I'm a male so not sure if there is a difference with the SP or not. We change
my catheter about once a month or at 5-6 weeks at longest. You have probably
already tried a fresh catheter change but if not perhaps that could help? Hope
you can get it figured out...Us Quads have enough to worry about as it is. Dan
H.***
On Friday, April 30, 2021, 03:06:41 PM CDT, Lori Michaelson
<[email protected]> wrote:
When I went to my urologist's office for my January 22nd of this year (as
expected for my every 6 month appointment with him) and he said that everything
looked great and instead of seeing him every 6 months I should not need to see
him for another year. I was going to him every 6 months to see him and have him
do a cystoscopy to make sure there were no more 'growths' or 'polyps' that was
found several years ago and was superficial bladder cancer. I did not feel bad
or expect the following:
Less than 2 months later and me not having any problems... on April 16 in the
morning I was laying in a bunch of pee. Just out of the blue and absolutely no
reason for it. And it kept coming and mostly in the evening after laying down
and we never knew what to expect the following morning. For one example, as I
was doing my care this morning, I felt the pressure of me not urinating through
the catheter and, sure enough, it was like a fountain in the air.
I made an appointment on April 21st to see my urologist and he was as surprised
as I was. I have always taken oxybutynin 5mg extended release 3 times a day. On
Wednesday before my appointment at the end of January of this year I was doing
great (physically for the most part) and had no problems with my bladder,
spasms or anything else. I have really enjoyed this urologist and he is great.
Another member of the Quad list has him and he likes him too.
He gave me several boxes of Toviaz to try (which I did for a good week) but it
did not help.
I was the symptomatic of a UTI but they wanted me to take a couple of
antibiotics for what was in my urine and had been off and on for years. This
week they said they were going to: antibiotic but never did. Then wrote out a
script for Myrbetrig (another script for bladder spasms) and the co-pay for
that was over $300!!!
I asked my insurance what was the most inexpensive bladder spasm medications
and they said it would be Tolterodine 4 mg extended release once a day. My
co-pay was around $31 for 30 days. I started it yesterday at dinner time.
Last evening there was some leaking but not like this morning which was having
it spurt up in the air like a fountain of urine.
I have never experienced this before. I need 2 chux on my bed, a large heavy
duty paper and one ABD pad that I was going to stop ordering because I had
always been having large amounts of vaginal discharge but that discontinued
quite a while ago. Now I need them.
Have any of you with SP catheters experienced this? I am actually stunned with
this coming on so quickly and continuing.
Thanks!
--
“Petting, scratching, and cuddling a dog could be as soothing to the mind and
heart as deep meditation and almost as good for the soul as prayer.” ― Dean
Koontz