Find a good infectious disease doctor – most of them are not qualified and say colonization is just a fact of life and not to worry. Personally, we haven’t found one so we cut way down on sugar and use D-Mannose supplement like a teaspoon per day. That seems to keep the bacteria from getting too bad.
From: Danny Espinoza <[email protected]> Sent: Monday, November 26, 2018 7:27 PM To: 'Lori Michaelson' <[email protected]>; 'quad-list' <[email protected]> Subject: RE: [QUAD-L] Multi-drug-resistant bacteria keep coming back & I am "colonized" Yea with MRSA in my bladder and I’ve got a SP catheter ☹ -Danny From: Lori Michaelson <[email protected]<mailto:[email protected]>> Sent: Monday, November 26, 2018 4:12 PM To: quad-list <[email protected]<mailto:[email protected]>> Subject: [QUAD-L] Multi-drug-resistant bacteria keep coming back & I am "colonized" Has anyone else been diagnosed with colonized with ongoing unrelentless multi-drug-resistant bacteria? I thought for sure that after I got my SP catheter (actually was forced to but it is still a common type catheter for us quads) I would be doing great and, instead, pretty much every month I have been having pathogenic, multi-drug-resistant bacteria in my urine let itself known by giving me my "always indicative" symptoms (severe bladder & flank pain). I have been I intramuscular injections and, of late, Macrobid. Last month when I finished my 7 day prescription of Macrobid it helped but then, just over a week later, my symptoms returned which was a week ago yesterday (on a Monday). Now I have the same bacteria in there and they want to prescribe the same antibiotic but only 5 day dosage! I am thankful it has not gone systemic (give me fever) but the bladder pain is SO BAD. I now think they really know what to do. Especially this time because not only do I have the same to multi-drug-resistant bacteria in there that reappeared so quickly but a third different bacteria that I have never seen in my lab report before ( Streptococcus agalactiae). I thought I would be able to make it until February without getting other infections but I have been getting them pretty routinely since I last saw my urologist in August. Since they are multi-drug-resistant... I am surprised he has not sent me to an infectious disease Dr. Total Lori "Petting, scratching and cuddling a dog could be soothing to the mind and heart and deep meditation and almost as good for the soul as prayer." ~Dean Koontz PennWell Corporation is located at 1421 S. Sheridan Road, Tulsa OK, 74112 USA. If you wish to unsubscribe, please forward this message to @[email protected] with REMOVE in the subject line. You may unsubscribe at any time. H^[X2uq
