I had a suprapubic catheter
put in in June of 2017 (last year). Only 5 later a growth or
polyp shut up against my bladder wall. I had a bladder biopsy
done in February of THIS year & it turned out to be
superficial or low-grade cancer so it was removed. The last
time I had a cystoscopy for my urologist to look in my urine
everything looked fine. That was August 31st of this year.
I have also had back-to-back
nosocomial infections (the two big superbugs to make matters
worse) that are commonly found in hospitals or clinics and
that is when they began to appear... the first one was after
my urologist wanted to be the first to change my catheter the
first 3 months after switching to an SP catheter and then they
have just continued. They cause severe bladder and kidney
pain. They are also multi-drug-resistant. The symptomatic
bacteria (2 superbugs present at the same time) were treated
with antibiotic injections of Rocephin but the pain did not go
away so I had another urine culture done last Friday and just
got the results today. Enterococcus species and Staphylococcus
Aureus - MRSA is what was found. It is sensitive to very
little drugs.
I am currently awaiting
'what to do' from my urologist.. I just called them to see if
they got the results also and they have but the urologist has
yet to tell me what to do when he is not seeing patients and
for his nurse to get back with me.
Just about every website
says that SP catheters are supposed to cut down on infections
but I have had just the opposite happen. The catheter changes
are done with extreme cleanliness and sterility. My home
health agency nurse who does them has done many catheter
changes and my live-in caregiver watches her and sees that she
is doing everything correctly.
My question is:
Has anyone experienced some
resistance when trying to insert their suprapubic catheter
and/or had a tiny blood clot or tiny tiny blood flakes (that
quickly disappear) after a catheter change?
Thank you!
~Lori
C4/5 complete quad, 39 years
post
--
"Petting, scratching and cuddling a dog
could be soothing to the mind and heart and deep
meditation and almost as good for the soul as prayer."
~Dean Koontz
